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Trial · NCT00000623

Thalassemia (Cooley's Anemia) Clinical Research Network (TCRN)

NCT00000623, Completed, Carelon Research

3 sourcestrials-2026-11-12-0.5.0

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ConductScience Library. Thalassemia (Cooley's Anemia) Clinical Research Network (TCRN). Trials, record NCT00000623. Release trials-2026-11-12-0.5.0, 12 Nov 2026. https://conductscience.org/library/trials/NCT00000623

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Trial

As registered on ClinicalTrials.gov, in the graph's capture of the registry.

Title
Thalassemia (Cooley's Anemia) Clinical Research Network (TCRN)
NCT number
NCT00000623
Status
Completed
Enrollment
1,000 participants, estimated
Lead sponsor
Carelon Research
Conditions
Anemia, Cooley's, Beta-Thalassemia, Hematologic Diseases, Thalassemia, Osteoporosis, Iron Overload, Hypertension, Pulmonary
Interventions
Deferoxamine, Deferiprone, Arginine, Sildenafil, Decitabine
First posted
1999-10-28
Last updated
2014-03-04

Source ClinicalTrials.gov

Registered outcomes1

Each outcome the trial registered, primary first, in ClinicalTrials.gov's words.

ListOutcomeTime frameDescription
PrimaryVary by protocol

Outcomes0

Each outcome the trial posted results for, in ClinicalTrials.gov's words.

None in this release.

Results by group0

Each measurement the trial posted, group by group, in the words and numbers it posted.

None in this release.

Participant flow0

How many started, completed or left each group, period by period.

None in this release.

Adverse events0

Each adverse event the trial posted, group by group: the participants affected out of those at risk.

None in this release.

Adverse event totals0

The totals the trial posted for each group.

None in this release.

Papers1

The papers the trial lists on ClinicalTrials.gov.

PMIDListed as
14988152BACKGROUND

Source PubMed

Grants6

The grants NIH RePORTER links to the trial, newest funded first: NIH's, and some of AHRQ's, CDC's, FDA's and VA's. Each shows its title, principal investigators, organization and funder in its newest year.

ProjectTitlePrincipal investigatorsOrganizationFunderFiscal yearsSource
U01HL065232Thalassemia Clinical Research NetworkKWIATKOWSKI, JANET LCHILDREN'S HOSP OF PHILADELPHIANATIONAL HEART, LUNG, AND BLOOD INSTITUTE2000 to 2009NIH RePORTER
U01HL065233Thalassemia Clinical Research Network, CanadaOLIVIERI, NANCY FUNIVERSITY HEALTH NETWORKNATIONAL HEART, LUNG, AND BLOOD INSTITUTE2000 to 2009NIH RePORTER
U01HL065238Thalassemia Clinic Research NetworkMCKINLAY, SONJA MNEW ENGLAND RESEARCH INSTITUTES, INC.NATIONAL HEART, LUNG, AND BLOOD INSTITUTE2000 to 2009NIH RePORTER
U01HL065239Thalassemia Clinical Research NetworkVICHINSKY, ELLIOTT PCHILDREN'S HOSPITAL & RES CTR AT OAKLANDNATIONAL HEART, LUNG, AND BLOOD INSTITUTE2000 to 2009NIH RePORTER
U01HL065244Thalassemia Clinical Research NetworkGIARDINA, PATRICIA JWEILL MEDICAL COLL OF CORNELL UNIVNATIONAL HEART, LUNG, AND BLOOD INSTITUTE2000 to 2009NIH RePORTER
U01HL065260Thalassemia Clinical Research NetworkNEUFELD, ELLIS JBOSTON CHILDREN'S HOSPITALNATIONAL HEART, LUNG, AND BLOOD INSTITUTE2000 to 2009NIH RePORTER

Trial comparisons0

Comparisons of the trial's two groups, calculated by ConductScience from the counts it posted.

None in this release.

Tests0

The ConductCognition tests this trial's registered outcomes name, as ScienceGraph matched them in trial-tests-2026-11-12-0.2.1.

None in this release.

Data dates

The day each source was copied for this release.

ClinicalTrials.gov
2026-11-12
ClinicalTrials.gov
Results, from AACT
2026-03-23
AACT
NIH grant links
2026-11-13
NIH RePORTER

Sources 3

  • ClinicalTrials.gov's posted results, through CTTI's AACTFreely available. Acknowledgement requested
  • ClinicalTrials.govNo license stated
  • NIH RePORTER's clinical studies and project filesPublic domain
Each source's terms
  • ClinicalTrials.gov's posted results, through CTTI's AACTClinicalTrials.gov data via Aggregate Analysis of ClinicalTrials.gov (AACT), CTTI. CTTI makes its materials freely available and requests acknowledgement. https://aact.ctti-clinicaltrials.org/documentation/299
  • ClinicalTrials.govnone stated
  • NIH RePORTER's clinical studies and project filesPublic domain (NIH RePORTER)

ClinicalTrials.gov's data carry an international copyright outside the United States: https://clinicaltrials.gov/about-site/terms-conditions.

For software

Read this trial from software.

The record and each of its lists are JSON, twenty rows a page. No key.

GET https://conductscience.org/api/trials/v1/NCT00000623

GET https://conductscience.org/api/trials/v1/NCT00000623/registered