Trial · NCT07903402
AGU Registry and NHS
NCT07903402, Recruiting, Rare Trait Hope
3 sourcestrials-2026-11-12-0.5.0
Cite this record
ConductScience Library. AGU Registry and NHS. Trials, record NCT07903402. Release trials-2026-11-12-0.5.0, 12 Nov 2026. https://conductscience.org/library/trials/NCT07903402
On this page
Trial
As registered on ClinicalTrials.gov, in the graph's capture of the registry.
- Title
- AGU Registry and NHS
- NCT number
- NCT07903402
- Status
- Recruiting
- Enrollment
- 300 participants, estimated
- Lead sponsor
- Rare Trait Hope
- Conditions
- Aspartylglucosaminuria, Aspartylglucosamidase (AGA) Deficiency
- First posted
- 2026-10-29
- Last updated
- 2026-10-29
Source ClinicalTrials.gov
Registered outcomes3
Each outcome the trial registered, primary first, in ClinicalTrials.gov's words.
| List | Outcome | Time frame | Description |
|---|---|---|---|
| Primary | Number of Participants With Each Reported AGU Sign or Symptom | Baseline and at least annually for up to 5 years. | Number and percentage of participants with each AGU sign or symptom reported through registry surveys by participants or their representatives. Each sign or symptom will be summarized separately at baseline and subsequent assessments to describe its frequency over time. |
| Primary | Age at First Reported AGU Symptoms | Baseline | Age in years at the first reported AGU symptoms, calculated from date of birth and reported symptom-onset date. |
| Primary | Age at AGU Diagnosis | Baseline | Age in years at diagnosis, calculated from date of birth and reported diagnosis date. |
Source ClinicalTrials.gov
Outcomes0
Each outcome the trial posted results for, in ClinicalTrials.gov's words.
None in this release.
Results by group0
Each measurement the trial posted, group by group, in the words and numbers it posted.
None in this release.
Participant flow0
How many started, completed or left each group, period by period.
None in this release.
Adverse events0
Each adverse event the trial posted, group by group: the participants affected out of those at risk.
None in this release.
Adverse event totals0
The totals the trial posted for each group.
None in this release.
Papers0
The papers the trial lists on ClinicalTrials.gov.
None in this release.
Grants0
The grants NIH RePORTER links to the trial, newest funded first: NIH's, and some of AHRQ's, CDC's, FDA's and VA's. Each shows its title, principal investigators, organization and funder in its newest year.
None in this release.
Trial comparisons0
Comparisons of the trial's two groups, calculated by ConductScience from the counts it posted.
None in this release.
Tests0
The ConductCognition tests this trial's registered outcomes name, as ScienceGraph matched them in trial-tests-2026-11-12-0.2.1.
None in this release.
Data dates
The day each source was copied for this release.
Sources 3
- ClinicalTrials.gov's posted results, through CTTI's AACTFreely available. Acknowledgement requested
- ClinicalTrials.govNo license stated
- NIH RePORTER's clinical studies and project filesPublic domain
Each source's terms
- ClinicalTrials.gov's posted results, through CTTI's AACTClinicalTrials.gov data via Aggregate Analysis of ClinicalTrials.gov (AACT), CTTI. CTTI makes its materials freely available and requests acknowledgement. https://aact.ctti-clinicaltrials.org/documentation/299
- ClinicalTrials.govnone stated
- NIH RePORTER's clinical studies and project filesPublic domain (NIH RePORTER)
ClinicalTrials.gov's data carry an international copyright outside the United States: https://clinicaltrials.gov/about-site/terms-conditions.
For software
Read this trial from software.
The record and each of its lists are JSON, twenty rows a page. No key.
GET https://conductscience.org/api/trials/v1/NCT07903402
GET https://conductscience.org/api/trials/v1/NCT07903402/registered